Patient Resources

Patient-facing resources for myalgic encephalomyelitis / chronic fatigue syndrome — practical guidance on symptoms, pacing, and advocacy.

1 Practical Tools and Resources

This page collects practical, actionable tools and resources for ME/CFS patients — things you can use today, separate from the scientific content of the paper.

1.1 Hidden Disabilities Sunflower

The Hidden Disabilities Sunflower is a discreet, internationally recognised signal that the wearer has a non-visible disability and may need additional support, time, or understanding in public spaces.

ME/CFS is an invisible illness. The Sunflower lanyard lets you make it visible — on your own terms, without having to explain yourself every time.

Where it’s recognised: airports, train stations, supermarkets, banks, hospitals, sports venues, universities, and many more — across 30+ countries worldwide.

How to get one: Lanyards are available free or at low cost directly from the Sunflower website. You do not need a formal diagnosis to wear one.

Visit the Sunflower website →

1.2 Finding Recognised Venues

Use the Sunflower location map to find businesses and venues near you that recognise the Sunflower.

Also See

The full Resources and Support appendix contains a comprehensive guide to patient organisations, online communities, clinical trial registries, disability and legal resources, and more.