Podcasts
- The Understanding ME/CFS Podcast: Apple Podcasts, Spotify
| Podcast | Description |
|---|---|
| The Understanding ME/CFS Podcast | Hosted by Patrick Ussher (7-year ME/CFS patient, author of Understanding ME/CFS: Strategies for Healing). Weekly interviews with patients and experts. Covers research, treatments, quality of life, and recovery stories. |
- Chronically Complex: The #MEAction Podcast: https://www.meaction.net/chronically-complex-meaction-podcast/
Interviews influential voices in ME/CFS and Long COVID. Topics include books on complex chronic disease, #MillionsMissing, #StopRestPace, disability activism, and art from disabled artists. Notable guests: Ryan Prior (CNN journalist, Forgotten Plague filmmaker), Cynthia Adinig (Long COVID advocate, SolveME board member).
- CFS Unravelled: By Dan Neuffer (recovered from ME/CFS). Interviews with recovered patients and expert practitioners.
- Discomfort Zone (Invisible Not Broken): Hosted by Jason, engineering graduate who developed fibromyalgia, ME/CFS, and POTS. Each episode explores what it means to be chronically ill and disabled.
- This Podcast Will Kill You – Episode 137: “ME/CFS: What’s in a name? (A lot, actually)” (April 2024). Deep dive into biology, history, and current research.
| Podcast | Description |
|---|---|
| Hope and Help for Fatigue & Chronic Illness | Mission to help people with post-viral syndromes including Long COVID and ME/CFS. |
- La Science, CQFD — France Culture: https://www.radiofrance.fr/franceculture/podcasts/la-science-cqfd/fatigue-chronique-une-maladie-en-quete-de-re-connaissance-9729715
“Syndrome de fatigue chronique : une maladie en quête de (re)connaissance” (58 min, August 2026, hosted by Alexandra Delbot). French-language episode discussing France’s recent official recognition of ME/CFS by the national health insurance (Assurance-maladie), which removed the psychological classification and defined the disease by a chronically disabling exhaustion with symptom exacerbation after minor exertion (PEM). Reports that approximately 200,000 people in France are affected, often after a viral infection. Guests include neurologist François-Jérôme Authier, one of the few EM-SFC (ME/CFS) specialists in France, and internist Frédérique Retornaz (Hôpital Européen de Marseille). Relevant to the French context described in the France section of this appendix, where ME/CFS recognition has historically lagged. Related French-language episodes: “Chronique d’une fatigue annoncée” (La Méthode scientifique) and “Fatigue chronique : des marqueurs visibles au niveau cellulaire” (La Science au labo, below).
- La Science au labo — France Culture: https://www.radiofrance.fr/franceculture/podcasts/la-science-au-labo/fatigue-chronique-des-marqueurs-visibles-au-niveau-cellulaire-2517457
“Fatigue chronique : des marqueurs visibles au niveau cellulaire” (7 min, August 2026). Short French-language chronicle reporting on visible cellular markers for chronic fatigue syndrome, companion piece to the main La Science, CQFD episode above. Broadcast Monday 31 August 2026.