Social Media Hashtags and Campaigns

1 Key Hashtags

\#MillionsMissing Primary advocacy hashtag for global protests
\#MECFS Standard disease hashtag
\#pwME “People with ME”
\#SevereME Focusing on severe/very severe patients
\#MyalgicE Short form for myalgic encephalomyelitis
\#May12th ME Awareness Day
\#StopRestPace Pacing advocacy
\#TeachMETreatME 2024 campaign theme
\#LongCovid Related condition with significant overlap

2 #MillionsMissing Campaign

Annual global campaign for ME health equality, organized by #MEAction. May 12th is ME Awareness Day—patients gather (in-person and virtually) to demand recognition, research, and clinical care. In 2025, communities joined at the U.S. Capitol to advocate for protecting Medicaid, home care support, research funding, and open science.

The campaign highlights the “millions missing” from their own lives due to illness, and the millions of research dollars missing from funding.