Books by Patients and Advocates

1 Patient Memoirs

/ When Force Meets Fate: A Mission to Solve an Invisible Illness: Jamison Hill (2021). Former bodybuilder’s journey through severe ME/CFS.

/ The Puzzle Solver: A Scientist’s Desperate Quest to Cure the Illness that Stole His Son: Tracie White and Ron Davis (2021). Story of Ron Davis and Whitney Dafoe.

Understanding ME/CFS — patient-authored guidebook.
Book Title Author / Description
Understanding ME/CFS: Strategies for Healing Patrick Ussher. Guide by a patient, companion to podcast.

/ The Long Haul: Ryan Prior. On Long COVID and ME/CFS advocacy.

2 Clinical and Reference Works

See also the scientific literature cited throughout this document. Patient organizations often maintain curated reading lists of accessible scientific overviews.